A Portland man appears to have a pill-sized camera stuck in his gut. That man is me... Let me explain.
For the average Joe, the following statement might sound a bit peculiar: I have swallowed a pill-sized camera a number of times. You see, I have Crohn's Disease (CD) in the small intestine -- a 20 foot-long portion of the gastrointestinal tract that runs between the stomach and the large intestine (colon). A "
PillCam" is the most non-invasive, detailed method to survey this area as it doesn't require a scope up the rectum or down the esophagus, nor does it require any tissue slicing. It's also one of the safest procedures available -- the retention rate is
as low as 1%. Unfortunately, this most recent capsule endoscopy resulted in my admission to the 1% club.
On March 27th, 2018, I swallowed the PillCam that is currently lodged in my small intestine. If you do the math, that's more than 82 days ago (over 12 weeks). After
hiking Smith Rock and
summiting Black Butte a couple weeks later, I thought for sure the pill would have exited. It didn't, as evident by the follow-up X-ray. It can be difficult to find research on such a what-if scenario that happens to so few, but I did manage to find
a Motherboard article telling the story of Scott Willis, a CD patient that had a PillCam lodged in his gut for eight weeks. One of the key differences between him and me is that he had a partial block and endured more symptoms, prompting him to schedule a procedure to get it out quicker. I'm relatively symptom free.
We have tried upping the dose of corticosteroids to reduce inflammation and help the pill pass through the strictured areas, but that didn't seem to work. Most recently, I had two
double-balloon enteroscopy procedures done within a week apart. They were able to locate the PillCam during the second procedure, but weren't able to retrieve it without risking the scope itself becoming stuck. The next step is to try again via the esophagus. The potential issue/complication here is the location. As my doctors warned, the PillCam is stuck 15 feet down and the scope is only 20 feet in length. There's little wiggle room if the pill is slightly further down the GI tract than estimated.
I am sharing this story with the Slashdot community for two reasons. First, those entrenched in the world of cyborgs and/or modern-day medical procedures may find this experience particularly interesting. Second, the more people who know about the procedures and complications of Crohn's Disease the better. For those interested, I'll update this post after the next procedure. Have you or someone you know experienced a capsule endoscopy? Please share what you feel comfortable with.
UPDATE 7/11/18: Yesterday, I had the procedure to remove the PillCam via the esophagus and it wasn't successful. The doctor said he tried everything he could to retrieve it but the scope wasn't quite long enough to reach the pill. I'll be talking with a surgeon next week and will update this post when a surgery date is confirmed.